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Qual Life Res. 2013 Oct;22(8):2063-72. doi: 10.1007/s11136-012-0326-0. Epub 2012 Nov 30.

Well-being in mothers of children with congenital heart defects: a 3-year follow-up.

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1
Department of Psychosomatics and Health Behavior, Norwegian Institute of Public Health, Post Box 4404, Nydalen, 0403, Oslo, Norway, MariaTeresaGronning.Dale@fhi.no.

Abstract

PURPOSE:

This prospective case-cohort study compared subjective well-being (SWB) among mothers whose children had various degrees of congenital heart defects (CHD) with mothers of children without CHD (controls).

METHODS:

Nationwide CHD registry data were linked to data collected from the Norwegian Mother and Child Cohort Study at gestational week 30, 6 months, and 36 months postpartum. A total of 175 mothers of children with mild, moderate, and severe CHD were identified in a cohort of 44,144 mothers. The SWB index was operationalized by means of three subscales: a cognitive aspect, positive affect, and negative affect.

RESULTS:

Mothers of children with severe CHD reported significantly lower SWB than the controls at 6 months postpartum (p = .003), with further decrease in SWB at 36 months postpartum (p = .001). SWB levels in the mild and moderate CHD group did not deviate significantly from controls.

CONCLUSIONS:

The findings suggest a pattern in which all stressors concerning the severely ill child lead to significant deterioration of maternal well-being. Having a child with mild or moderate CHD, which is a less severe and shorter-term stressor, did not reduce mothers' well-being.

PMID:
23196922
DOI:
10.1007/s11136-012-0326-0
[Indexed for MEDLINE]
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