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Nurs Stand. 2012 Sep 5-11;27(1):40-7.

End of life care for people with a learning disability.

Author information

  • 1Mid Essex Hospital Services NHS Trust, Broomfield Hospital, Chelmsford. sandra.mortonnance@meht.nhs.uk

Abstract

AIM:

To explore the experiences of learning disability and district nurses caring for people with a learning disability at the end of their lives.

METHOD:

A small-scale semi-structured qualitative study involving interviews was carried out to explore the experiences of healthcare professionals from two specialist healthcare settings.

FINDINGS:

Healthcare professionals felt that formal guidelines and support were needed in this complex area. The study also revealed that successful provision of palliative care for people with a learning disability requires a person-centred approach.

CONCLUSION:

Modifications to existing palliative care services, involving joint working, improved co-ordination and reasonable adjustments, is recommended. This aims to address any inequalities in care provision for people with a learning disability who are at the end of their lives.

PMID:
23082363
DOI:
10.7748/ns2012.09.27.1.40.c9270
[PubMed - indexed for MEDLINE]
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