Format

Send to

Choose Destination
Am J Public Health. 2012 Dec;102(12):2225-30. doi: 10.2105/AJPH.2012.300813. Epub 2012 Oct 18.

Ethical issues in health research with novel online sources.

Author information

1
Institute of Biomedical Ethics, University of Zürich, Zürich, Switzerland. vayena@ethik.uzh.ch

Abstract

Health-related research is increasingly drawing on novel sources of online data, such as crowdsourced information about disease outbreaks, consumer-supplied information provided to health or wellness Web sites, Internet search queries about personal health, and social network postings that identify health behaviors. We offer examples of online sources and their uses, identify ethical and policy issues they generate, and formulate key questions for future discussion and investigation. Further work in this area will require cross-disciplinary collaboration to develop ethics and policy guidance for the ethical use of these novel data sources in health-related research.

PMID:
23078484
PMCID:
PMC3519346
DOI:
10.2105/AJPH.2012.300813
[Indexed for MEDLINE]
Free PMC Article

Supplemental Content

Full text links

Icon for Atypon Icon for PubMed Central
Loading ...
Support Center