1. Epilepsy Behav. 2012 Oct;25(2):150-5. doi: 10.1016/j.yebeh.2012.07.020. Epub 2012
Sep 29.

A comparison of epilepsy self-management needs: provider and patient
perspectives.

Johnson EK(1), Fraser RT, Miller JW, Temkin N, Barber J, Caylor L, Ciechanowski
P, Chaytor N.

Author information: 
(1)Department of Human Services & Rehabilitation, Western Washington University
and Health Promotion Research Center, University of Washington, Seattle, WA, USA.
ericajohnsonphd@uwalumni.com

A consistent and serious empirical issue in the epilepsy self-management
literature involves dropout and attrition in intervention studies. One
explanation for this issue revolves around "top-down" intervention designs (i.e.,
interventions generated by epilepsy clinicians and researchers) and the potential
for disparity with patient interests, capabilities, and perceived needs. The
purpose of this study was to extend the work of Fraser et al. (2011) [19] by
comparing perceptions regarding self-management problems, topics, and program
design, between two subgroups of adult patients with epilepsy (n=165) and
epilepsy clinicians (n=20). Results indicate differences in problem severity
ratings, program emphasis (i.e., goal-setting, coping, education), and program
leadership between clinicians and each patient subgroup to varying degrees. These
findings highlight some of the differences in opinion between patients and
clinicians and emphasize the need for patient-involved planning with regard to
self-management programs. Implications and explanations are offered as points for
consideration in self-management program development.

Copyright © 2012 Elsevier Inc. All rights reserved.

DOI: 10.1016/j.yebeh.2012.07.020 
PMID: 23032121  [Indexed for MEDLINE]