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J Pediatr Psychol. 2013 Jan-Feb;38(1):82-93. doi: 10.1093/jpepsy/jss099. Epub 2012 Sep 30.

Disclosure and self-report of emotional, social, and physical health in children and adolescents with chronic pain--a qualitative study of PROMIS pediatric measures.

Author information

1
Department of Anthropology, University of Cincinnati, Cincinnati, OH, USA. Jeffrey.Jacobson@uc.edu

Abstract

OBJECTIVES:

To examine the content validity of the Patient-Reported Outcomes Measurement Information System pediatric measures, including the pain interference scale, among children and adolescents (aged 8-18 years) who experience chronic pain. To describe children's understandings of the health domain constructs and elucidate verbal and conceptual aspects of self-reported pain-related functioning, which shape disclosure and reporting.

METHODS:

34 children and youth with diagnoses of juvenile idiopathic arthritis or noninflammatory chronic pain completed semistructured and cognitive interviews exploring the meaning, experience, and expression of up to 4 of the Patient-Reported Outcomes Measurement Information System pediatric domains: anger, anxiety, depressive symptoms, fatigue, pain interference, and peer relationships. Team-based thematic and content analyses were conducted.

RESULTS:

Clear verbal and social-cognitive differences were observed in representations and accounts of the domain-experiences across age-groups, but we noted little, if any, evidence of problems with content validity.

CONCLUSIONS:

Findings suggest the importance of a rigorous developmental approach for understanding the verbal and cognitive dimensions of pediatric self-reports and patient-reported outcomes.

PMID:
23027719
PMCID:
PMC3547235
DOI:
10.1093/jpepsy/jss099
[Indexed for MEDLINE]
Free PMC Article

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