A phoenix rising: who considers herself a "survivor" after a diagnosis of breast cancer?

J Cancer Surviv. 2012 Dec;6(4):451-7. doi: 10.1007/s11764-012-0240-z. Epub 2012 Aug 31.

Abstract

Purpose: The purpose of this study is to investigate factors associated with patients' identification of themselves as survivors after a diagnosis of breast cancer.

Methods: A self-administered survey was deployed through the nonprofit organization Breastcancer.org . As part of a larger study, we collected data on treatment, mental health, perceived prognosis, concerns about recurrence, and the question, "Do you consider yourself a survivor of breast cancer?"

Results: Of the 629 survey respondents, 492 (78 %) considered themselves survivors of breast cancer. Factors independently associated with an affirmative response were (1) believing that one's prognosis was "very good" compared to others (p = <0.001), (2) recalling being told that treatment was curative (p = 0.04), (3) having better mental health (p = 0.002), and (4) having received chemotherapy (p = 0.01).

Conclusions and implications for cancer survivors: The disparate factors associated with the identification of oneself as a survivor-both the perception of having a very good prognosis and having received chemotherapy (reflecting high-risk disease rather than a good prognosis)--are intriguing. Clinicians caring for women with breast cancer should be sensitive to the fact that not everyone considers herself a survivor. Addressing transitions at the end of treatment and during the follow-up period may be challenging for clinicians and patients alike. Awareness of the complexities of survivor identification may help clinicians in counseling their patients.

Publication types

  • Research Support, N.I.H., Extramural

MeSH terms

  • Adult
  • Aged
  • Aged, 80 and over
  • Awareness / physiology
  • Breast Neoplasms / diagnosis
  • Breast Neoplasms / mortality
  • Breast Neoplasms / psychology*
  • Breast Neoplasms / therapy
  • Female
  • Humans
  • Mental Health
  • Middle Aged
  • Self Concept*
  • Surveys and Questionnaires
  • Survivors / psychology*
  • Uncertainty