Format

Send to

Choose Destination
Eur J Hum Genet. 2013 Jan;21(1):14-20. doi: 10.1038/ejhg.2012.104. Epub 2012 Jun 6.

Publics and biobanks: Pan-European diversity and the challenge of responsible innovation.

Author information

1
London School of Economics and Political Science, London, UK. g.gaskell@lse.ac.uk

Erratum in

  • Eur J Hum Genet. 2013 Jan;21(1):121.

Abstract

This article examines public perceptions of biobanks in Europe using a multi-method approach combining quantitative and qualitative data. It is shown that public support for biobanks in Europe is variable and dependent on a range of interconnected factors: people's engagement with biobanks; concerns about privacy and data security, and trust in the socio-political system, key actors and institutions involved in biobanks. We argue that the biobank community needs to acknowledge the impact of these factors if they are to successfully develop and integrate biobanks at a pan-European level.

PMID:
22669414
PMCID:
PMC3522201
DOI:
10.1038/ejhg.2012.104
[Indexed for MEDLINE]
Free PMC Article

Supplemental Content

Full text links

Icon for Nature Publishing Group Icon for PubMed Central
Loading ...
Support Center