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J Pediatr Nurs. 2013 Jan;28(1):28-36. doi: 10.1016/j.pedn.2012.03.031. Epub 2012 Apr 24.

"It's no big deal": adolescents with congenital heart disease.

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University of Alberta, Edmonton, Alberta, Canada.


Improved survival rates for congenital heart disease (CHD) have increasing numbers requiring lifelong specialized health care. In this interpretive description, interview data were analyzed to understand how adolescents with CHD describe everyday life and relate to questions about quality of life. Most viewed themselves as normal, their CHD something that they situated into the foreground or background of their lives as it suited their needs. They spoke of quality-of-life issues in a concrete manner focusing on physical activity limitations and their need to fit in. These findings can direct interventions for adolescents with CHD for transition to adulthood.

[Indexed for MEDLINE]

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