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Prenat Diagn. 2012 May;32(5):456-60. doi: 10.1002/pd.3838. Epub 2012 Apr 12.

The Polish National Registry for Fetal Cardiac Pathology: organization, diagnoses, management, educational aspects and telemedicine endeavors.

Author information

1
Fetal Cardiology Center Type C, Department for Diagnosis and Prevention of Congenital Malformations, Medical University of Lodz and Polish Mother's Memorial Hospital, Lodz, Poland. maciejslodki@op.pl

Abstract

OBJECTIVE:

We describe the National Registry for Fetal Cardiac Pathology, a program under the Polish Ministry of Health aimed at improving the prenatal diagnosis, care, and management of congenital heart disease (CHD).

METHODS:

An online database was created to prospectively record diagnosis, prenatal care, delivery, follow-up, and still images and video for fetuses with CHD. A certification program in fetal cardiac ultrasound was also implemented. Optimal screening and referral centers were identified by number of fetuses entered in the Registry yearly by each center.

RESULTS:

From 2004 to 2009, 2910 fetuses with CHD were registered (2473 structural, 437 functional anomalies). The most common reasons for referral for fetal echocardiography were abnormal four-chamber view (56.0%) and extra-cardiac anomalies (8.2% ), while the most common diagnoses were atrioventricular septal defects (10.2%) and hypoplastic left heart syndrome (9.7%). Prenatal diagnosis increased yearly, from 10.0% of neonatal diagnoses in 2003 to 38.0% in 2008.

CONCLUSION:

From inception of the registry up to 2009 there has been a fourfold increase in the number of neonates referred for cardiac surgery in whom the condition was prenatally diagnosed. Equally important achievements include the establishment of a certification program for fetal echocardiography and the organization of prenatal and neonatal management.

PMID:
22495926
DOI:
10.1002/pd.3838
[Indexed for MEDLINE]

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