1. Epilepsy Behav. 2012 Mar;23(3):285-90. doi: 10.1016/j.yebeh.2012.01.006. Epub
2012 Feb 23.

Social support for self-management behaviors among people with epilepsy: a
content analysis of the WebEase program.

Walker ER(1), Bamps Y, Burdett A, Rothkopf J, Diiorio C.

Author information: 
(1)Department of Behavioral Sciences and Health Education, Rollins School of
Public Health, Emory University, USA. ereisin@emory.edu

Social support is an important component in managing epilepsy; however little is 
known about support provided to people with epilepsy. This study examined whom
people with epilepsy identify as supportive, and how those individuals support
people with epilepsy's self-management efforts. Data come from the WebEase
project, an effective online epilepsy self-management program. People with
epilepsy who participated in the pilot (n=35) and efficacy trials (n=118) were
included. A content analysis was conducted on responses to open-ended questions
related to support. The majority of participants provided information about their
supporters. The number of support providers ranged from 0 to 6, with about 12%
indicating no support. Parents and significant others were most commonly listed
as supporters. Support providers mainly offer emotional and instrumental support,
reminders and aid for taking medication, and support for self-management
strategies. These results could be useful for interventions aimed at bolstering
support in order to improve self-management.

Copyright © 2012 Elsevier Inc. All rights reserved.

DOI: 10.1016/j.yebeh.2012.01.006 
PMID: 22364762  [Indexed for MEDLINE]