Format

Send to

Choose Destination
See comment in PubMed Commons below
PLoS Curr. 2011 Apr 12;3:RRN1230. doi: 10.1371/currents.RRN1230.

Advocacy Recruiting for Huntington's Disease Clinical Trials.

Author information

1
Huntington's Disease Drug Works; Evergreen Neuroscience Institute; Northwest Chapter Huntington's Disease Society of America; Huntington's Disease Society of America and University of Rochester Medical Center.

Abstract

Recent clinical trials for Huntington's disease (HD) have been slowed by the inability to complete enrollment in a timely manner. We report a successful advocacy-based recruiting approach at Evergreen Neuroscience Institute, a new Huntington Study Group (HSG) investigative site that lacked an HD patient base. By partnering with community advocates and utilizing web-based advocacy group alerts, Evergreen ranked third of 27 North American sites conducting the Study of ACR16 for the Treatment of Huntington's disease (HART) for number of participants, and first for rate of recruitment -- all while decreasing the time and financial resources needed for site-based recruiting. To our knowledge this is the first published outcome study for advocacy recruiting in any disease population.

PubMed Commons home

PubMed Commons

0 comments
How to join PubMed Commons

    Supplemental Content

    Full text links

    Icon for Public Library of Science Icon for PubMed Central
    Loading ...
    Support Center