1. Epilepsy Behav. 2010 Nov;19(3):255-63. doi: 10.1016/j.yebeh.2010.08.033.

Fostering epilepsy self management: the perspectives of professionals.

Clark NM(1), Stoll S, Youatt EJ, Sweetman M, Derry R, Gorelick A.

Author information: 
(1)University of Michigan at Ann Arbor, Ann Arbor, MI 48109-2029, USA.
nmclark@umich.edu

Epilepsy clinical, academic, and human service professionals (N = 101) were
surveyed regarding the challenges people with epilepsy face managing their
condition. 30% of the respondents had personal experience with epilepsy.
Interviews were transcribed and coded into themes. Response differences by
profession and personal experience were examined using chi-squared tests. The two
greatest challenges reported most frequently for people with epilepsy were
finding high quality health care and managing psychological and emotional
effects. The two most important epilepsy outcomes were seizure control and
quality of life. The two greatest challenges facing clinicians were too little
time with patients and limited clinical focus. The two main weaknesses in the
field were insufficient research and narrow approaches to addressing epilepsy.
Significant differences in responses across professions were evident as were
differences according to personal experience with epilepsy. Few clinicians cited 
quality of care as a major challenge (p<0.0001) compared to other professions.
Few respondents with personal experience with epilepsy cited stigma as a
challenge (p = 0.006).

Copyright © 2010 Elsevier Inc. All rights reserved.

DOI: 10.1016/j.yebeh.2010.08.033 
PMID: 21145491  [Indexed for MEDLINE]