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Clin Nurs Res. 2011 May;20(2):120-34. doi: 10.1177/1054773810391249.

Symptom experience of pulmonary arterial hypertension patients.

Author information

1
University of Massachusetts, Lowell, 01854, USA. ajm0928@yahoo.com

Abstract

PURPOSE:

To describe symptoms experienced by pulmonary arterial hypertension (PAH) patients and the impact these symptoms have had on their lives.

METHOD:

Qualitative descriptive methodology was chosen incorporating semistructured interviews to investigate the symptom experience of ten patients with PAH.

RESULTS:

All patients were diagnosed with WHO Group 1 PAH and 70% were WHO functional Class III. Two overarching themes emerged: holding back and redefining life. Holding back was represented by three subthemes: fear, anticipation of worsening symptoms, and treatment effects. Redefining life was characterized by uncertainty, activity restrictions, and making the best of it.

CONCLUSION:

This study revealed specific concerns related to the symptom experience of PAH patients and how they redefined their lives to accommodate these symptoms. These findings provide a basis for larger, quantitative studies to examine the extent of symptom impact as well as a framework for development of self management interventions to improve the symptom experience and QOL.

PMID:
21131430
DOI:
10.1177/1054773810391249
[Indexed for MEDLINE]

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