Format

Send to

Choose Destination
WMJ. 2010 Oct;109(5):261-6.

Self- and registry-reported cancer in a population-based longitudinal study.

Author information

1
University of Wisconsin-Madison, School of Medicine and Public Health, Department of Ophthalmology and Visual Sciences, 610 N Walnut St, 4th Fl WARF, Madison, WI 53726-2336, USA. kleinb@epi.ophth.wisc.edu

Abstract

PURPOSE:

To evaluate the concordance of cancer diagnosis from self- and registry reports.

METHODS:

Self-reported diagnosis information from participants in a cohort study was compared with linkage data from the Wisconsin Cancer Reporting System.

RESULTS:

Overall, there was good agreement between self- and registry-reported cancers, with 90% of all matches being considered an exact match. Concordance varied by cancer site; agreement was excellent for breast (85.4%) and prostate (78.9%) cancers.

CONCLUSIONS:

While self-reported cancer diagnoses for some cancers such as breast and prostate cancer are important sources of information and may be reliable substitutes when registry data are incomplete or not available, a combination of self and registry reports with mortality information may yield the most accurate information about cancer for purposes of health care planning and conducting epidemiologic studies.

PMID:
21066931
PMCID:
PMC3058779
[Indexed for MEDLINE]
Free PMC Article

Supplemental Content

Full text links

Icon for PubMed Central
Loading ...
Support Center