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Palliat Med. 2010 Sep;24(6):594-607. doi: 10.1177/0269216310371411. Epub 2010 Jun 24.

Part 2: Home-based family caregiving at the end of life: a comprehensive review of published qualitative research (1998-2008).

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1
Centre on Aging, University of Victoria, British Columbia, Canada. lmfunk@uvic.ca

Abstract

Family caregivers are crucial for supporting home death. We reviewed published qualitative research on home-based family caregiving at end of life (1998-2008), synthesizing key findings and identifying gaps where additional research is needed. Multiple databases were searched and abstracts reviewed for a focus on family caregiving and palliative care; full articles were reviewed to extract data for this review. In total, 105 articles were included. Findings are presented in the following areas: the caregiving experience and contextual features; supporting family caregivers at end of life; caregiving roles and decision-making; and rewards, meaning and coping. We noted a lack of definitional clarity; a reliance on interview methods and descriptive, thematic analyses, and a relative lack of diversity of patient conditions. Research needs are identified in several areas, including the bereavement experience, caregiver ambivalence, access to services, caregiver meaning-making, and relational and contextual influences on family caregiving at end of life.

PMID:
20576673
DOI:
10.1177/0269216310371411
[Indexed for MEDLINE]
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