Format

Send to

Choose Destination
Patient Educ Couns. 2011 Apr;83(1):87-91. doi: 10.1016/j.pec.2010.04.026. Epub 2010 May 31.

Understanding information and education gaps among people with type 1 diabetes: a qualitative investigation.

Author information

1
Centre for Population Health Sciences, School of Clinical Science and Community Health, University of Edinburgh, UK. a.d.rankin@ed.ac.uk

Abstract

OBJECTIVE:

Many patients with type 1 diabetes struggle to self-manage this chronic disease, often because they have a poor knowledge and understanding of the condition. However, little attention has been paid to examining the reasons for this poor knowledge/understanding. To inform future educational interventions, we explored patients' accounts of the education and information they had received since diagnosis, and the reasons behind gaps in their diabetes knowledge.

METHODS:

Semi-structured interviews were conducted with 30 type 1 diabetes patients enrolled on a structured education programme in the UK. Data were analysed using an inductive, thematic approach.

RESULTS:

Patients' accounts illustrated a number of knowledge deficits which were influenced by various lifecourse events. Reasons for deficits included: diagnosis at a young age and assumption of decision-making responsibility by parents; lack of engagement with information when feeling well; transitions in care; inconsistency in information provision; and, lack of awareness that knowledge was poor or incomplete.

CONCLUSION:

Patients' knowledge deficits can arise for different reasons, at different points in the lifecourse, and may change over time.

PRACTICE IMPLICATIONS:

The delivery of individualised education should take account of the origins of patients' knowledge gaps and be provided on a regular and on-going basis.

PMID:
20570079
DOI:
10.1016/j.pec.2010.04.026
[Indexed for MEDLINE]

Supplemental Content

Full text links

Icon for Elsevier Science
Loading ...
Support Center