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Qual Life Res. 2010 May;19(4):585-94. doi: 10.1007/s11136-010-9618-4. Epub 2010 Mar 5.

Sampling plan and patient characteristics of the PROMIS pediatrics large-scale survey.

Author information

1
Department of Epidemiology, University of North Carolina at Chapel Hill, CB #7294, Chapel Hill, NC 27599, USA. dirwin@email.unc.edu

Abstract

PURPOSE:

This paper describes a large-scale administration of the Patient-Reported Outcomes Measurement Information System (PROMIS) pediatric items to evaluate measurement characteristics.

METHODS:

Each child completed one of seven test forms containing items from a pool of 293 PROMIS items and four legacy scales. PROMIS items covered six domains (physical function, emotional distress, social role relationship, fatigue, pain, and asthma).

RESULTS:

From January 2007 to May 2008, 4,129 children aged 8-17 were enrolled. The sample was 51% female, 55% aged 8-12, 42% minority race and 17% were Hispanic ethnicity. Approximately, 35% of the children participating in the survey consulted a clinician for a chronic illness diagnosis or treatment within 6 months prior to study enrollment.

CONCLUSIONS:

The final PROMIS pediatric item banks include physical function (n = 52 items), emotional distress (n = 35 items), social role relationships (n = 15 items), fatigue (n = 34 items), pain (n = 13 items), and asthma (n = 17 items). The initial calibration data were provided by a diverse set of children with varying health states (e.g., children with a variety of common chronic illnesses) and racial/ethnic backgrounds.

PMID:
20204706
PMCID:
PMC3157238
DOI:
10.1007/s11136-010-9618-4
[Indexed for MEDLINE]
Free PMC Article

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