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Perspect Biol Med. 2010 Winter;53(1):121-35. doi: 10.1353/pbm.0.0135.

Telling stories about illness and disability: the limits and lessons of narrative.

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Bioethics and Humanities, Upstate Medical University, 618 Irving Avenue, Syracuse, NY 13210, USA.


Autobiographical narratives of illness and disability are influential in popular and medical discourses of illness and disability, in part because these narratives represent illness and disability within a sociocultural context, intersecting with other categories of difference. Clinicians can benefit patients through a critical understanding of the formal and social conventions that shape illness and disability narratives and the effect these conventions can have on the lived experience of illness and disability. I analyze the 2003 edition of Lucy Grealy's Autobiography of a Face to illustrate these socio-narrative conventions, especially in light of an afterword that significantly revises the ending to Grealy's narrative. I explore the parallels between narrative conventions-such as the "recovery narrative"-and caregivers' expectations that shape the role of the "good patient," as well as the resistance to conventions of closure, represented by the "renegotiated ending."

[Indexed for MEDLINE]

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