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Int J Nurs Terminol Classif. 2010 Jan-Mar;21(1):21-32. doi: 10.1111/j.1744-618X.2009.01141.x.

A comparison of the concept of patient participation and patients' descriptions as related to healthcare definitions.

Author information

1
Department of Neurobiology, Care Sciences and Society, Karolinska Institutet and School of Health and Medical Sciences, Orebro University, Orebro, Sweden. anncatrine.eldh@comhem.se

Abstract

PURPOSE:

To depict what patients describe as patient participation and whether descriptions of patient participation are affected by gender, age, healthcare contact, and duration of disease.

DATA SOURCES:

Current patients (n= 362) responded to a questionnaire on participation.

DATA SYNTHESIS:

Patients' descriptions focused on having knowledge, rather than being informed, and on interacting with health professionals, rather than merely partaking in decision making.

CONCLUSIONS:

Patients' descriptions of participation correspond with the International Classification of Functioning, Disability and Health's definition, which includes "being involved in a life situation." Healthcare legislation and professionals employ a narrower concept of patient participation as defined by, e.g., Medical Subject Headings.

PRACTICE IMPLICATIONS:

Findings suggest that health professionals need to embrace what patients describe as participation.

[Indexed for MEDLINE]

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