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Issues Compr Pediatr Nurs. 2010;33(1):39-55. doi: 10.3109/01460860903486515.

Developmental disabilities: effects on well siblings.

Author information

1
University of Kansas School of Nursing, Kansas City, Kansas 66160, USA. pwilliam@kumc.edu

Abstract

BACKGROUND:

Forty studies performed between 1970 and 1995 indicated that 60% of parents with children with developmental disabilities reported manifestations of increased risk or negative effects on the well siblings.

METHOD:

A secondary data analysis was performed using qualitative data gathered during the baseline of a randomized controlled clinical trial of an intervention for siblings/families of children with long-term conditions, including developmental disabilities. Content analysis was used to identify themes from responses of 151 parents to an open-ended question on their perceptions of the effects on well siblings of living at home with a brother/sister with developmental disabilities.

RESULTS:

Of 363 themes identified, 61.1% reflected negative manifestations of increased risk in well siblings; 1.7% indicated no risk; and 37.2% reflected positive outcomes, suggesting the continued need for potential interventions.

CONCLUSION:

Contemporary family life in these families, as portrayed by parents' descriptions, reflects need in child health care for more intervention research on this vulnerable population.

PMID:
20121579
DOI:
10.3109/01460860903486515
[Indexed for MEDLINE]

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