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J Gen Intern Med. 2010 Jan;25 Suppl 1:62-7. doi: 10.1007/s11606-009-1114-6.

Embracing a health services research perspective on personal health records: lessons learned from the VA My HealtheVet system.

Author information

1
Veterans and Consumers Health Informatics Office, Office of Health Information, Veterans Health Administration, US Department of Veterans Affairs, Washington, DC, USA. kim.nazi@va.gov

Abstract

BACKGROUND:

Personal health records (PHRs) are designed to help people manage information about their health. Over the past decade, there has been a proliferation of PHRs, but research regarding their effects on clinical, behavioral, and financial outcomes remains limited. The potential for PHRs to facilitate patient-centered care and health system transformation underscores the importance of embracing a broader perspective on PHR research.

OBJECTIVE:

Drawing from the experiences of VA staff to evaluate the My HealtheVet (MHV) PHR, this article advocates for a health services research perspective on the study of PHR systems.

METHODS:

We describe an organizing framework and research agenda, and offer insights that have emerged from our ongoing efforts regarding the design of PHR-related studies, the need to address PHR data ownership and consent, and the promotion of effective PHR research collaborations.

CONCLUSION:

These lessons are applicable to other PHR systems and the conduct of PHR research across different organizational contexts.

PMID:
20077154
PMCID:
PMC2806958
DOI:
10.1007/s11606-009-1114-6
[Indexed for MEDLINE]
Free PMC Article
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