Format

Send to

Choose Destination
See comment in PubMed Commons below
J Genet Couns. 2010 Apr;19(2):148-60. doi: 10.1007/s10897-009-9267-3. Epub 2009 Nov 10.

Women's perceptions of the personal and family impact of genetic cancer risk assessment: focus group findings.

Author information

1
Division of Clinical Cancer Genetics, City of Hope Comprehensive Cancer Center, 1500 E. Duarte Rd., Duarte, CA 91010-3000, USA. dmacdonald@coh.org

Abstract

Women with a personal or family history of breast or ovarian cancer are increasingly presenting for genetic cancer risk assessment (GCRA). To explore the personal and family impact of GCRA, four focus groups were conducted of women seen for risk assessment. Participants were 22 primarily non-Latina White women with a personal or family history of breast or ovarian cancer. Analysis of the data identified new themes related to balancing time to assimilate risk information with the need to make timely healthcare decisions, physicians' lack of sufficient genetic knowledge, and concern for daughters regardless of the daughters' age. Other themes related to protecting others, knowledge as empowerment, reassessing personal attribution of cancer risk, managing uncertainty, reappraising body image, and experiencing divergent family responses to communication of cancer risk and healthcare decisions. Understanding the personal and family impact of GCRA may enable genetics professionals to tailor their counseling efforts to better meet the needs of these women. Additional research is needed to extend these findings and identify interventions to support positive outcomes of GCRA.

PMID:
19902342
DOI:
10.1007/s10897-009-9267-3
[Indexed for MEDLINE]
PubMed Commons home

PubMed Commons

0 comments
How to join PubMed Commons

    Supplemental Content

    Full text links

    Icon for Springer
    Loading ...
    Support Center