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J Pediatr Nurs. 2009 Oct;24(5):423-32. doi: 10.1016/j.pedn.2008.01.082. Epub 2008 Jun 20.

An everyday struggle-Swedish families' lived experiences during a child's cancer treatment.

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  • 1Division of Nursing, Department of Health Sciences, Lund University, Lund, Sweden.


The aim was to elucidate families' lived experience during a child's cancer treatment. Interviews were conducted with members of 11 affected families. A hermeneutical phenomenological approach was chosen. "Focus on the ill child-An everyday struggle" emerged as an essential theme. The families' lived experience of daily life was described as "feeling drained," "disrupting family life," "feeling locked up and isolated," "retaining normality," "becoming experts," and "changing perspectives." The result indicates that life during a child's cancer treatment is a taxing period and that the entire family is in need of support to ease their burdens.

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