Format

Send to

Choose Destination
See comment in PubMed Commons below
J Perinat Neonatal Nurs. 2009 Apr-Jun;23(2):159-70. doi: 10.1097/JPN.0b013e3181a2cacc.

Supporting parents' decision making surrounding the anticipated birth of an extremely premature infant.

Author information

1
Department of Women, Children, and Family Health Science, University of Illinois at Chicago College of Nursing, Chicago, Illinois 60612, USA. karenk@uic.edu

Abstract

Parents who are at risk for giving birth to an extremely premature infant, defined as 22 to 25 weeks' gestation, can find themselves faced with urgent treatment decisions for their unborn infant that have life-altering consequences. Despite the recommendation for involving parents in decision making for these infants, there is limited evidence regarding guidelines for involving parents. In this article, we describe a case from a larger collective case study that examines the decision making and the decision support needs of parents regarding life support decisions made over time (prenatally and postnatally) for extremely premature infants from the perceptions of parents, physicians, and nurses. For this case study, we describe decisions that were made during the antenatal hospitalization of the mother whose infant was stillborn, the support the parents received, and advice for healthcare professionals for improving care to families. For this case, the mother and father, a physician, and 2 nurses were interviewed before the birth of the infant. The findings in this case study demonstrate the importance of the nurse being present when information is given to parents, of informing with compassion, and helping parents to understand treatment options and decisions.

PMID:
19474588
PMCID:
PMC2879333
DOI:
10.1097/JPN.0b013e3181a2cacc
[Indexed for MEDLINE]
Free PMC Article
PubMed Commons home

PubMed Commons

0 comments
How to join PubMed Commons

    Supplemental Content

    Full text links

    Icon for Lippincott Williams & Wilkins Icon for PubMed Central
    Loading ...
    Support Center