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Int Emerg Nurs. 2009 Jan;17(1):15-22. doi: 10.1016/j.ienj.2008.09.003. Epub 2008 Nov 11.

Patient participation in emergency care - a phenomenographic study based on patients' lived experience.

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School of Health Sciences and Social Work, Växjö University, Växjö, Sweden.


International guidelines promote patient participation in health care. When patients participate in their care they experience greater satisfaction. Studies have shown that patients in emergency departments express dissatisfaction with their care, and it was therefore important to study how patients understand and conceptualize their participation. The aim of this study was to describe patients' qualitatively different conceptions of patient participation in their care in an emergency department. Based on a lifeworld perspective, nine interviews were performed with patients in an emergency department. The phenomenographic analysis shows that participation by patients means contact with the emergency department staff in three categories of conceptions: being acknowledged; struggling to become involved; and having a clear space. The different conceptions of patient participation give us a deeper understanding of how patients may experience their care, and this result may provide a foundation for developing nursing practice and the quality of health care in line with international guidelines.

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