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Eur J Cancer. 2009 Mar;45(5):756-64. doi: 10.1016/j.ejca.2008.11.033. Epub 2009 Jan 6.

Evaluation of data quality in the cancer registry: principles and methods Part II. Completeness.

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Clinical Trials Service Unit and Epidemiological Studies Unit, University of Oxford, Oxford, UK.


The completeness of cancer registry data -- the extent to which all of the incident cancers occurring in the population are included in the registry database -- is an extremely important attribute of a cancer registry. Only a high degree of completeness in case-finding procedures will ensure cancer incidence rates and survival proportions are close to their true value. This second instalment of a two-part review of data quality methods at the cancer registry, focuses on the principles and techniques available for estimating completeness, separating methods into those that are semi-quantitative -- in that they give an indication of the degree of completeness relative to other registries or over time, and more quantitative techniques -- those that provide a numerical evaluation of the extent to which all eligible cases have been registered.

[Indexed for MEDLINE]

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