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Eur J Cancer. 2009 May;45(7):1218-31. doi: 10.1016/j.ejca.2008.10.037. Epub 2008 Dec 16.

Data quality at the Cancer Registry of Norway: an overview of comparability, completeness, validity and timeliness.

Author information

1
Department of Clinical and Registry-based Research, Cancer Registry of Norway, Institute of Population-based Cancer Research, Fridjof Nansens vei 19, Postbox 5313, Majorstuen, N-0304 Oslo, Norway. inger.kristin.larsen@kreftregisteret.no

Abstract

AIM:

To provide a comprehensive evaluation of the quality of the data collected on both solid and non-solid tumours at the Cancer Registry of Norway (CRN).

METHODS:

Established quantitative and semi-quantitative methods were used to assess comparability, completeness, accuracy and timeliness of data for the period 1953-2005, with special attention to the registration period 2001-2005.

RESULTS:

The CRN coding and classification system by and large follows international standards, with some further subdivisions of morphology groupings performed in-house. The overall completeness was estimated at 98.8% for the registration period 2001-2005. There remains a variable degree of under-reporting particularly for haematological malignancies (C90-95) and tumours of the central nervous system (C70-72). For the same period, 93.8% of the cases were morphologically verified (site-specific range: 60.0-99.8%). The under-reporting in 2005 due to timely publication is estimated at 2.2% overall, based on the number of cases received at the registry during the following year.

CONCLUSION:

This review suggests the routines in place at the CRN yields comparable data that can be considered reasonably accurate, close-to-complete and timely, thereby justifying our policy of the reporting of annual incidence one year after the year of diagnosis.

PMID:
19091545
DOI:
10.1016/j.ejca.2008.10.037
[Indexed for MEDLINE]

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