Format

Send to

Choose Destination
See comment in PubMed Commons below
J Am Med Inform Assoc. 2008 Nov-Dec;15(6):737-43. doi: 10.1197/jamia.M2865. Epub 2008 Aug 28.

Whose personal control? Creating private, personally controlled health records for pediatric and adolescent patients.

Author information

1
Division of General Pediatrics, Children's Hospital Boston, Boston, MA 02115, USA. fabienne.bourgeois@childrens.harvard.edu

Abstract

Personally controlled health records (PCHRs) enable patients to store, manage, and share their own health data, and promise unprecedented consumer access to medical information. To deploy a PCHR in the pediatric population requires crafting of access and security policies, tailored to a record that is not only under patient control, but one that may also be accessed by parents, guardians, and third-party entities. Such hybrid control of health information requires careful consideration of both the PCHR vendor's access policies, as well as institutional policies regulating data feeds to the PCHR, to ensure that the privacy and confidentiality of each user is preserved. Such policies must ensure compliance with legal mandates to prevent unintended disclosures and must preserve the complex interactions of the patient-provider relationship. Informed by our own operational involvement in the implementation of the Indivo PCHR, we provide a framework for understanding and addressing the challenges posed by child, adolescent, and family access to PCHRs.

PMID:
18755989
PMCID:
PMC2585529
DOI:
10.1197/jamia.M2865
[Indexed for MEDLINE]
Free PMC Article
PubMed Commons home

PubMed Commons

0 comments
How to join PubMed Commons

    Supplemental Content

    Full text links

    Icon for Silverchair Information Systems Icon for PubMed Central
    Loading ...
    Support Center