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J Hum Nutr Diet. 2008 Aug;21(4):359-67.

The everyday life of adolescent coeliacs: issues of importance for compliance with the gluten-free diet.

Author information

1
Department of Food and Nutrition, Epidemiology and Public Health Sciences, Umeå University, Umeå, Sweden. cecilia.olsson@kost.umu.se

Abstract

BACKGROUND:

Noncompliance with the gluten-free diet is often reported among adolescents with coeliac disease. However, knowledge is limited regarding their own perspectives and experiences of managing the disease and the prescription of a gluten-free diet. The aim of this study was to explore how adolescents with coeliac disease perceive and manage their everyday lives in relation to a gluten-free diet.

METHODS:

In total, 47 adolescents with coeliac disease, divided into 10 focus groups, were interviewed. In the qualitative analysis, themes emerged to illustrate and explain the adolescents' own perspectives on life with a gluten-free diet.

RESULTS:

The probability of compliance with the gluten-free diet was comprised by insufficient knowledge of significant others, problems with the availability and sensory acceptance of gluten-free food, insufficient social support and their perceived dietary deviance. Three different approaches to the gluten-free diet emerged: compliers, occasional noncompliers, and noncompliers. Each approach, as a coping strategy, was rational in the sense that it represented the adolescents' differing views of everyday life with coeliac disease and a prescription of a gluten-free diet.

CONCLUSIONS:

dolescents with coeliac disease experience various dilemmas related to the gluten-free diet. The study demonstrated unmet needs and implies empowerment strategies for optimum clinical outcomes.

PMID:
18754144
[Indexed for MEDLINE]

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