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Qual Life Res. 2008 Aug;17(6):895-913. doi: 10.1007/s11136-008-9350-5. Epub 2008 Jun 3.

Parent-child agreement across child health-related quality of life instruments: a review of the literature.

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1
Department of Psychology and Health Sciences, University of Worcester, Worcester WR2 6AJ, UK. p.upton@worc.ac.uk

Abstract

AIM:

To systematically review the literature published since 1999 on paediatric health-related quality of life (HRQL) in relation to parent-child agreement.

METHODS:

Literature searches used to identify studies which evaluated parent-child agreement for child HRQL measures.

RESULTS:

Nineteen studies were identified, including four HRQL instruments. The Pediatric Quality of Life Inventory (PedsQL) was most commonly used. Differences in parent-child agreement were noted between domains for different measures. The impact of child and parent characteristics were not consistently considered; however parents of children in a nonclinical sample tended to report higher child HRQL scores than children themselves, while parents of children with health conditions tended to underestimate child HRQL.

CONCLUSION:

Despite increasing numbers of studies considering children's HRQL, information about variables contributing to parent-child agreement levels remains limited. Authors need to consistently provide evidence for reliability and validity of measures, and design studies to systematically investigate variables that impact on levels of parent-child agreement.

PMID:
18521721
DOI:
10.1007/s11136-008-9350-5
[Indexed for MEDLINE]
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