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Am J Ment Retard. 2008 May;113(3):159-77. doi: 10.1352/0895-8017(2008)113[159:PQOLIM]2.0.CO;2.

Perceived quality of life in mothers of children with fragile X syndrome.

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1
FPG Child Development Institute, University of North Carolina, Chapel Hill, NC 27599-8180, USA. wheeler@mail.fpg.unc.edu

Abstract

A mixed method approach was used to explore quality of life of 101 mothers of children with fragile X syndrome. Mothers completed a self-report of personal quality of life and measures of mental health and well-being. A subset was interviewed about quality of life. The distribution of scores on the Quality of Life Inventory was similar to the norms, indicating that these mothers do not, as a whole, report a lower quality of life than does the average woman. Significant predictors of quality of life were trait hope and parenting stress. The most common positive factor was being a mother. However, they also indicated that parenting a child with fragile X presented challenges and stressors, primarily when the social environment was not supportive.

[Indexed for MEDLINE]

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