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Cleft Palate Craniofac J. 2008 Mar;45(2):163-71. doi: 10.1597/06-230.1.

Caregiver and patient reported outcomes after repair of cleft lip and/or palate in the Philippines.

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1
Department of Speech Pathology and Audiology, Western Michigan University, 1903 West Michigan Avenue, Kalamazoo, MI 49008, USA.

Abstract

OBJECTIVES:

To establish the feasibility of conducting outcomes research among patients treated during a medical mission and to identify the salient outcomes for patients and caregivers in one region of the Philippines.

DESIGN AND SETTING:

Prospective structured interview conducted in or near participants' homes on the island of Cebu, Philippines.

PARTICIPANTS:

Individuals who had surgery at least 6 months earlier within the study region were eligible. Recipients of surgery were located from surgical records and by word of mouth.

MAIN OUTCOME MEASURES:

(1) Proportion of individuals located. (2) Primary outcomes of oral cleft repair identified for the sample.

RESULTS:

Of 99 people on a surgical list, 52 (53%) were located, eight were excluded (ineligible, unavailable, or inaccessible), and 44 agreed to participate in the study. Ten participants were identified via word of mouth. Seventy-five interviews were conducted (21 caregiver-patient pairs, one adolescent, and 32 caregivers of a child <7 years). Nearly all participants (99%) would encourage others to pursue surgery. Open-ended questions were coded to identify primary outcomes: improved speech (52%), improved eating (25%), social benefits (14%), and improved appearance (6%). Caregivers (50%) and patients (68%) reported that improved speech was the most important change after surgery.

CONCLUSIONS:

Patients and caregivers ascribe positive changes related to cleft surgery. Outcomes research requires cooperation with local professionals who can communicate effectively. These data serve to demonstrate feasibility and as a model for future studies of treatment outcomes in follow-up to international medical missions.

PMID:
18333653
DOI:
10.1597/06-230.1
[Indexed for MEDLINE]

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