Format

Send to

Choose Destination
Arch Pediatr Adolesc Med. 2007 Jun;161(6):597-602.

Pediatric patients receiving palliative care in Canada: results of a multicenter review.

Author information

1
Pediatric Palliative Care, IWK Health Centre, Halifax, Nova Scotia. kim.widger@utoronto.ca

Abstract

OBJECTIVES:

To describe the patients who received care from the 8 dedicated pediatric palliative care programs in Canada in 2002 and to estimate the number of children who may have benefited but did not receive services from these programs.

DESIGN:

Retrospective review of medical records combined with a survey of each program.

SETTING:

Seven pediatric palliative care programs based in tertiary care settings and 1 freestanding children's hospice.

PARTICIPANTS:

The programs cared for 317 children during 2002, of whom 123 died during that year. An additional 32 children died by the end of 2003.

MAIN EXPOSURE:

Pediatric palliative care program.

RESULTS:

Nearly half (48.6%) of the patients were younger than 5 years, and almost half of these were younger than 1 year. Primary diagnoses were disorders of the nervous system (39.1%), malignancies (22.1%), and conditions arising in the perinatal period or congenital anomalies (22.1%). Most of the children (43.9%) died at home, with those centers reporting more comprehensive home care services having the highest percentage of home deaths. From a national perspective, between 5% and 12% of the children who could benefit from palliative care received services from 1 of these programs.

CONCLUSIONS:

Pediatric palliative care programs in Canada care for a diverse population of patients with a wide range of age and disease conditions. Only a small percentage of children who die, however, receive services from these dedicated programs.

PMID:
17548766
DOI:
10.1001/archpedi.161.6.597
[Indexed for MEDLINE]

Supplemental Content

Full text links

Icon for Silverchair Information Systems
Loading ...
Support Center