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Ophthalmic Genet. 2007 Mar;28(1):25-30.

Psychosocial adjustment to visual loss in patients with retinitis pigmentosa.

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  • 1Department of Ophthalmology, The Hospital for Sick Children, Toronto, Ontario, Canada.

Abstract

PURPOSE:

To investigate psychosocial adjustment to visual loss in patients with retinitis pigmentosa (RP).

DESIGN:

Cross-sectional study.

METHODS:

Thirty-three legally blind patients with RP participated in the study. Information regarding the patients' adjustment to their visual loss was obtained using the Psychological Adjustment to Illness Scale (PAIS-SR). Seven psychosocial domains were tested: health-care orientation, vocational environment, domestic environment, sexual relationships, extended family relationships, social environment, and psychological distress. These scores were compared with the psychosocial adjustment of patients with diabetes.

RESULTS:

Significantly elevated scores (a high score reflecting poor adjustment) were seen in four out of seven domains. The highest relative score was seen in the health-care orientation domain (65 +/- 14, p < 0.001), followed by vocational function (61 +/- 11, p < 0.001), social environment (58 +/- 9, p < 0.001), and extended family relationships (55 +/- 9, p < 0.05). The total PAIS score was significantly elevated (58 +/- 8; p < 0.001).

CONCLUSIONS:

Patients with RP have difficulties in adjusting to their visual loss particularly with respect to health-care orientation, vocational environment, social environment, and extended family relationships. They face more difficulties in these domains than diabetic patients in adjusting to their illness.

PMID:
17454744
DOI:
10.1080/13816810701201930
[PubMed - indexed for MEDLINE]
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