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J Spec Pediatr Nurs. 2007 Jan;12(1):13-23.

Lived experiences of mothers caring for children with thalassemia major in Thailand.

Author information

1
Community Health Department, Siam University, Thailand. suksiri_pr@hotmail.com

Abstract

ISSUES AND PURPOSE:

Thalassemic patients must be given continuous treatment throughout their lives due to the physical and psychological effects of their disorder; their families also are impacted. This qualitative study explored the lived experiences of 15 mothers of children with thalassemia major by conducting semistructured interviews; the data were analyzed utilizing content analysis.

CONCLUSION:

Six themes were identified: lack of knowledge about thalassemia, psychosocial problems, concerns for the future, social support systems, financial difficulty, and the effectiveness of healthcare services.

PRACTICE IMPLICATIONS:

These findings suggest that a holistic, culturally sensitive nursing approach should be considered when caring for children with thalassemia.

[Indexed for MEDLINE]

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