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J Autism Dev Disord. 2007 Oct;37(9):1636-46. Epub 2006 Dec 16.

Development of a video-based evaluation tool in Rett syndrome.

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Curtin University of Technology, Perth, WA, Australia.


This paper describes the development of a video-based evaluation tool for use in Rett syndrome (RTT). Components include a parent-report checklist, and video filming and coding protocols that contain items on eating, drinking, communication, hand function and movements, personal care and mobility. Ninety-seven of the 169 families who initially agreed to participate returned a videotape within 8 months of the first request. Subjects whose videos were returned had a similar age profile to those who did not provide a video but were more likely to have classical than atypical RTT. Evidence of the content and social validity and inter-rater reliability on 11 videos is provided. Video may provide detailed, objective assessment of function and behaviour in RTT.

[Indexed for MEDLINE]

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