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Seizure. 2006 Dec;15(8):610-4. Epub 2006 Sep 26.

What about us? Siblings of children with epilepsy.

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1
Department of Neurology, State University of Campinas, FCM/Unicamp, P.O. Box 6111, 13083-970 Campinas, SP, Brazil.

Abstract

RATIONALE:

It is known that epilepsy has a severe impact in the quality of life of the patients; however, it affects the lives of all family members. The psychosocial repercussions of epilepsy are often of greater significance than the seizures themselves.

METHODS:

This was a prospective study, conducted from January 2005 to December 2005 at the pediatric epilepsy clinic of our University Hospital. Parents were interviewed by one of the authors according to a structured questionnaire about the impact of epilepsy in the life of the siblings of children with epilepsy.

RESULTS:

One hundred and twenty-seven children, siblings of 78 patients with epilepsy were evaluated. From the 127 siblings of children with epilepsy, 60 were girls and 67 were boys. Ages ranged from 5 to 18 years old (mean=11.7 years). After the diagnosis of epilepsy, the siblings had only negative feelings toward the disease, mostly sadness and fear.

CONCLUSION:

Our data showed that the impact of epilepsy in the lives of siblings of children with epilepsy is much more severe than previously suspected.

PMID:
17005422
DOI:
10.1016/j.seizure.2006.08.007
[Indexed for MEDLINE]
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