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Spinal Cord. 2007 Jun;45(6):411-9. Epub 2006 Sep 26.

Perceptions of issues associated with the maintenance and improvement of long-term health in people with SCI.

Author information

1
Faculty of Rehabilitation Medicine, Department of Physical Therapy, University of Alberta, Glenrose Rehabilitation Hospital, Alberta, Canada. trish.manns@ualberta.ca

Abstract

STUDY DESIGN:

Qualitative design using focus groups.

OBJECTIVE:

To explore the perceptions of people with SCI and their caregivers about information needs and service delivery options that may assist them to maintain or improve their long-term health.

SETTING:

Province wide project in Alberta, Canada.

METHODS:

Eight focus groups were conducted; five with community dwelling people with SCI and three with unpaid caregivers (family and friends). Content analysis was used to identify categories and themes arising from the data.

RESULTS:

The findings from the study are broader than the original objective to explore information needs and service delivery options to promote long-term health. The participants more globally discussed factors that contribute to or provide barriers to their long-term health. Those factors are captured in five categories, including readiness, information pathways, community health care, health promotion, and contextual factors. A framework that illustrates the relationships between categories was constructed.

CONCLUSION:

The framework identifies areas to target in programmes designed to reduce or prevent secondary conditions in people with SCI.

SPONSORSHIP:

This study was funded by the Alberta Paraplegic Foundation and the Glenrose Rehabilitation Hospital Foundation.

PMID:
17003772
DOI:
10.1038/sj.sc.3101973
[Indexed for MEDLINE]

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