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J Inherit Metab Dis. 2006 Oct;29(5):677-82. Epub 2006 Aug 17.

A review of the psychosocial effects of false-positive results on parents and current communication practices in newborn screening.

Author information

1
Division of Genetics, Children's Hospital Boston, Massachusetts, USA. jenny.hewlett@chidrens.harvard.edu

Abstract

As more states adopt expanded newborn screening for metabolic disorders, the overall number of false positives increases. False-positive screening results have been associated with increased anxiety and stress in parents of infants who require follow-up testing, even after the infant's good health is confirmed. This article reviews the literature on the negative impact of false-positive newborn screening results on parents, along with a review of current communication practices for follow-up screening. The results of this review suggest that parental stress and anxiety can be reduced with improved education and communication to parents, specifically at the time of follow-up screening. Communication strategies with sample materials are proposed.

PMID:
16917730
DOI:
10.1007/s10545-006-0381-1
[Indexed for MEDLINE]

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