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Eur J Cancer. 2006 Oct;42(15):2454-8. Epub 2006 Aug 10.

Patients and health professionals working together to improve clinical research: where are we going?

Author information

1
Department of Health Sciences, University of Leicester, Saionara, 31 Regent Street, Rowhedge, Colchester CO5 7EA, UK. hazelcagct@keme.co.uk

Abstract

The pace of active involvement of patients in clinical research has increased over the last 10-15 years. Advocacy for this engagement between patients and health professionals is briefly traced, based on the author's experiences both as an independent advocate and as co-founder and chairman (1995-1999) of the Consumers' Advisory Group for Clinical Trials (CAG-CT). A brief history is outlined. As the benefits and minor drawbacks of collaborative working have become increasingly evident, attitudes have changed and methodologies have developed. A new professionalism in relationships with doctors is being sought: common vocabularies need to be defined. Some research governance problems are identified: forward thinking to solve them is advocated.

PMID:
16904311
DOI:
10.1016/j.ejca.2006.05.022
[Indexed for MEDLINE]

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