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Am J Public Health. 2006 Sep;96(9):1618-22. Epub 2006 Jul 27.

Knowledge, attitudes, and behaviors of youths in the US hemophilia population: results of a national survey.

Author information

1
National Hemophilia Foundation, New York, NY 10001, USA. anazzaro@hemophilia.org

Abstract

OBJECTIVES:

The National Hemophilia Foundation and the Centers for Disease Control and Prevention conducted a national survey focusing on knowledge about, attitudes toward, and behaviors associated with key prevention activities among youths with hemophilia and used the data gathered to design a health promotion campaign.

METHODS:

A national, random sample of 459 patients was drawn from 20 hemophilia treatment centers and 8 hemophilia associations; 110 (24%) of the respondents were young people. A telephone questionnaire was used to measure knowledge, behaviors, and barriers to prevention.

RESULTS:

Thirty-six percent of the youth respondents believed that joint disease cannot be prevented; 60% managed hemophilia by avoiding physical activity. Only 31% of the respondents treated bleeding episodes within 1 hour. Although hepatitis was a clear threat to this hemophilic cohort, 78% did now know transmission routes for hepatitis C, and 67% did not know transmission routes for hepatitis B.

CONCLUSIONS:

Young people with chronic disorders need help understanding that they can prevent complications. We identified key messages for a hemophilia prevention campaign, including exercising to ensure healthy joints and treating bleeding episodes early and adequately.

PMID:
16873741
PMCID:
PMC1551966
DOI:
10.2105/AJPH.2005.075234
[Indexed for MEDLINE]
Free PMC Article

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