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Res Nurs Health. 2006 Jun;29(3):223-32.

Family patterns of decision-making in pediatric clinical trials.

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College of Nursing, University of Wisconsin-Milwaukee, Milwaukee, Wisconsin 53211, USA.


The decision-making process related to a child's participation in clinical trials often involves multiple family members. The aim of this study was to compare family patterns of decision-making within and across family units in pediatric clinical trials. Participants for this secondary analysis included 14 families from a larger study of informed consent. Four distinct patterns of decision-making were identified: Exclusionary, informative, collaborative, and delegated. These patterns varied with regard to three dimensions of parents' decision-making goals, child level of involvement, and the parental role. These patterns of decision-making affect how parents and children communicate with health professionals and influence the effectiveness of health care providers interactions with the family related to the decision-making process.

[Indexed for MEDLINE]

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