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J Public Health (Oxf). 2006 Jun;28(2):148-56. Epub 2006 Mar 23.

UKCP: a collaborative network of cerebral palsy registers in the United Kingdom.

Author information

1
National Perinatal Epidemiology Unit, University of Oxford, Old Road Campus, Headington, Oxford OX3 7LF, UK. geraldine.surman@npeu.ox.ac.uk

Erratum in

  • J Public Health (Oxf). 2006 Dec;28(4):400.

Abstract

Cerebral palsy (CP) is a relatively rare condition with enormous social and financial impact. Information about CP is not routinely collected in the United Kingdom. We have pooled non-identifiable data from the five currently active UK CP registers to form the UKCP database: birth years 1960-1997. This article describes the rationale behind this collaboration and the creation of the database. Data about 6910 children with CP are currently held. The mean annual prevalence rate was 2.1 [corrected] per 1000 live births for birth years 1986-1996. Where type is known, 91 per cent have spastic CP. Where data are available, nearly one-third of children have severely impaired lower limb function, and nearly a quarter have severely impaired upper limb function. As well as describing the range and complexity of motor and associated impairments, the pooled data from the UKCP database provide a platform for studies of aetiology, long-term outcomes, participation and service needs. The UKCP database is an important national resource for the surveillance of CP and the study of its epidemiology in the United Kingdom.

PMID:
16556625
DOI:
10.1093/pubmed/fdi087
[Indexed for MEDLINE]

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