Format

Send to

Choose Destination
Epidemiol Psichiatr Soc. 2005 Jan-Mar;14(1):4-9.

Developing the theoretical basis for service user/survivor-led research and equal involvement in research.

Author information

1
Centre for Citizen Participation, Brunel University, Islenorth, Middlesex, United Kingdom. peter.beresford@brunel.ac.uk

Abstract

AIMS AND METHODS:

This article, written from a service user/survivor perspective, explores a hypothesis which seeks to offer a more systematic basis for the full and equal involvement of mental health service users/survivors in both the research process and research structures more generally. The hypothesis challenges traditional emphasis on positivist assumptions about the priority of values of 'distance', 'neutrality' and 'objectivity' (which it argues discriminate against service users and their experiential knowledge). It explores instead the idea that 'the shorter the distance between direct experience and its interpretation, then the less likely resulting knowledge is to be inaccurate, unreliable and distorted.'

RESULTS AND CONCLUSIONS:

The proposal discusses ways in which such (objective and subjective) distance may be reduced, to improve the quality of research, to enable more equal involvement of service users and their direct experience and to make it possible for non-service user researchers to work alongside service users on more equal terms.

PMID:
15792288
[Indexed for MEDLINE]

Supplemental Content

Loading ...
Support Center