No abstract available
MeSH terms
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Anecdotes as Topic
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Child
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Community Participation*
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Foundations / organization & administration*
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Genetic Research*
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Health Education*
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Humans
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Information Dissemination
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Interinstitutional Relations
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Learning*
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Patient Advocacy*
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Professional-Family Relations
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Pseudoxanthoma Elasticum / complications
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Pseudoxanthoma Elasticum / genetics*
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Research Support as Topic
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Self-Help Groups
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Tissue Banks / organization & administration