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Epilepsy Behav. 2002 Dec;3(6S2):10-20.

Stigma, epilepsy, and quality of life.

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Department of Primary Care, University of Liverpool, Whelan Building, The Quadrangle, Brownlow Hill, L69 3GB, Liverpool, UK


Despite advances in the understanding and treatment of epilepsy within the past several decades, people with this disorder continue to be stigmatized by it. Though attitudes toward people with epilepsy have improved over the years, for many people with epilepsy, stigma continues to adversely impact their psychological well-being and quality of life. The stigma of epilepsy can be linked to a number of factors, including underresourced medical services, poor seizure control, and inadequate knowledge of epilepsy. Neither informal stigma nor formal discrimination is inevitable for epilepsy patients; however, for many individuals, epilepsy remains a defining feature of their identity, and such issues are a source of considerable concern for a number of patients.

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