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Arthritis Rheum. 2002 Apr 15;47(2):196-201.

Patients' perceptions of the effects of systemic lupus erythematosus on health, function, income, and interpersonal relationships: a comparison with Wegener's granulomatosis.

Author information

1
Clinical Immunology, University Hospital Groningen, Groningen, The Netherlands. m.m.boomsma@int.azg.nl

Abstract

OBJECTIVE:

To describe the patients' perceptions of the effects of systemic lupus erythematosus (SLE) and Wegener's granulomatosis (WG) on health, function, income, and interpersonal relationships.

METHODS:

114 patients with SLE, and 79 patients with WG completed a self-administered questionnaire. Patients had been diagnosed with SLE or WG for a median period of 10 and 5 years, respectively.

RESULTS:

All patients experienced substantial functional morbidity. Two-thirds of the patients with SLE or WG reported either a periodic or permanent inability to perform daily activities at home and/or at work. Furthermore, SLE as well as WG had a considerable impact upon the psychological and social life, affecting their happiness and altering relationships.

CONCLUSION:

Our study demonstrates that SLE and WG are associated with substantial medical morbidity resulting in physical and occupational disability. SLE has a profound impact on patients' lives, similar to that experienced in patients with WG.

PMID:
11954014
DOI:
10.1002/art.10341
[Indexed for MEDLINE]
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