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J Intern Med. 1999 Nov;246(5):497-501.

Quality of self-care in patients on replacement therapy with hydrocortisone.

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1
Department of Internal Medicine, Herlev University Hospital, Herlev, Denmark.

Abstract

OBJECTIVES:

To assess the quality of self-care in patients receiving replacement therapy with hydrocortisone for primary or secondary adrenal insufficiency.

DESIGN:

A questionnaire-based survey.

SETTING:

The outpatient Clinic of Endocrinology at the University Hospital in Herlev, Denmark.

SUBJECTS:

Ninety-seven patients identified from the case reports of the clinic. All patients had received repeated oral information about hydrocortisone treatment and dose adjustments. Eighty-four (87%) patients completed the questionnaire.

MAIN OUTCOME MEASURES:

Ability to act appropriately in case of physical stress, possession of a 'Steroid warning card', number and nature of episodes of physical stress during the past year and self-experienced level of information was recorded.

RESULTS:

Thirty-nine (46%) of the patients were not sufficiently skilled in coping with physical stress. This was more prominent in the elderly patients. Seventeen (20%) did not possess a 'steroid warning card'. Thirty-seven (44%) had experienced at least one febrile episode and 24 (29%) had been admitted to hospital during the past year. Fifty (60%) felt themselves to be well informed, but this did not correlate with the ability to act appropriately.

CONCLUSIONS:

The study shows the need for continuous education of patients with adrenal insufficiency. Oral instructions should be supplemented with written information or a more detailed and structured education.

PMID:
10583719
[Indexed for MEDLINE]
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