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Ann Intern Med. 1999 May 18;130(10):825-8.

Dialysis patients' preferences for family-based advance care planning.

Author information

1
West Virginia University, Morgantown 26506-9022, USA.

Abstract

BACKGROUND:

Most patients do not participate in advance care planning with physicians.

OBJECTIVE:

To examine patients' preferences for involving their physicians and families in advance care planning.

DESIGN:

Face-to-face interviews with randomly selected patients.

SETTING:

Community-based dialysis units in one rural and one urban region.

PARTICIPANTS:

400 hemodialysis patients.

MEASUREMENTS:

Questions about whom patients involve in advance care planning, whom patients would like to include in this planning, and patients' reactions to state legislation on surrogate decision makers in end-of-life care.

RESULTS:

Patients more frequently discussed preferences for end-of-life care with family members than with physicians (50% compared with 6%; P < 0.001). More patients wanted to include family members in future discussions of advance care planning than wanted to include physicians (91% compared with 36%; P < 0.001). Patients were most comfortable with legislation that granted their family end-of-life decision-making authority in the event of their own incapacity (P < 0.001).

CONCLUSION:

Most patients want to include their families more than their physicians in advance care planning.

PMID:
10366372
[Indexed for MEDLINE]

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