- Collection Description
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This collection contains a compilation of NIH authorized individual-level datasets on childhood cancers currently in dbGaP with various data use limitations (DULs) such as Pediatric Cancer Research without the NPU modifier. The collection has been created to streamline access to pediatric, and adolescent and young adults (AYA) cancer datasets under the purview of NCI DAC and other NIH IC DACs with permission and will include any additional authorized individual-level datasets as they become available. To request access to this study collection, select phs003964 in the dbGaP Authorized Access System.
- Authorized Access
- Studies Included in Collection
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Disease-Specific (Pediatric Cancer Research, PUB, MDS, GSO) (DS-PEDCR-PUB-MDS-GSO) n=68 studies
* Counts are unavailable for summary level data, such as analyses, or data stored in an external data source.
Study Accession Study Name Consent Group Subject Count Sample Count SSTR phs000178.v11.p8 The Cancer Genome Atlas (TCGA) General Research Use (GRU) 11429 11467 SSTR phs000218.v26.p8 National Cancer Institute (NCI) TARGET: Therapeutically Applicable Research to Generate Effective Treatments Disease-Specific (Pediatric Cancer Research) (DS-PEDCR) 6363 13179 SSTR phs000409.v1.p1 Sequencing of Medulloblastoma General Research Use (GRU) 93 306 SSTR phs000413.v2.p1 Transcriptome Sequencing of Pediatric AML FAB-M7 General Research Use (GRU) 15 85 SSTR phs000414.v1.p1 Whole Genome Sequencing of CBF-Leukemia General Research Use (GRU) 17 34 SSTR phs000508.v2.p1 Genomic Sequencing of Pediatric Rhabdoid Cancers Disease-Specific (Cancer, MDS) (DS-CA-MDS) 2 4 SSTR phs000508.v2.p1 Genomic Sequencing of Pediatric Rhabdoid Cancers Pediatric Cancer Research (PCR) 33 66 SSTR phs000638.v1.p1 Genome-Wide Association Study of Relapse of Childhood Acute Lymphoblastic Leukemia Health/Medical/Biomedical (HMB) 2487 2487 SSTR phs000720.v4.p1 Genomic Sequencing of Pediatric Rhabdomyosarcoma Disease-Specific (Cancer, MDS) (DS-CA-MDS) 13 26 SSTR phs000720.v4.p1 Genomic Sequencing of Pediatric Rhabdomyosarcoma General Research Use (PUB, MDS) (GRU-PUB-MDS) 794 927 SSTR phs000734.v1.p1 Osteosarcoma Genome-Wide Association Study General Research Use (GRU) 694 717 SSTR phs000792.v1.p1 Oncogenomics of Malignant Peripheral Nerve Sheath Tumors General Research Use (PUB, MDS) (GRU-PUB-MDS) 18 46 SSTR phs000868.v1.p1 Transcriptome Sequencing of Pediatric Neuroblastoma General Research Use (GRU) 29 29 SSTR phs000900.v1.p1 Functionally-defined Therapeutic Targets in DIPG General Research Use (GRU) 22 75 SSTR phs001052.v3.p1 Modelling Multi-Dimensional ClinOmics for Precision Therapy of Children and Adolescent Young Adults with Relapsed and Refractory Cancer: A Report from the Center for Cancer Research General Research Use (GRU) 83 180 SSTR phs001054.v1.p1 Genomic Characterization of Pediatric Low-Grade Gliomas Disease-Specific (Nervous Tissue Tumors) (DS-NTT) 26 43 SSTR phs001054.v1.p1 Genomic Characterization of Pediatric Low-Grade Gliomas General Research Use (GRU) 54 50 SSTR phs001072.v1.p1 Genomic Analysis of Relapsed Pediatric Acute Lymphoblastic Leukemia Disease-Specific (Cancer, PUB, MDS, GSO) (DS-CA-PUB-MDS-GSO) 57 179 SSTR phs001228.v3.p2 Gabriella Miller Kids First (GMKF) Pediatric Research Program in Susceptibility to Ewing Sarcoma Based on Germline Risk and Familial History of Cancer General Research Use (GRU) 1332 1505 SSTR phs001267.v1.p1 CIDR/NICHD Genetic Basis of Recessive Pediatric Brain Diseases - Group 2 General Research Use (GRU) 782 800 SSTR phs001287.v22.p7 CPTAC Proteogenomic Study General Research Use (GRU) 7239 7239 SSTR phs001327.v2.p1 Childhood Cancer Survivor Study (CCSS) Health/Medical/Biomedical (MDS) (HMB-MDS) 30716 11363 SSTR phs001337.v1.p1 AACR Project GENIE General Research Use (PUB) (GRU-PUB) 46510 48447 SSTR phs001350.v1.p1 Pancreatitis after Treatment for Acute Lymphoblastic Leukemia (SJIRB XPD04-123 and XPD05-078) Health/Medical/Biomedical (HMB) 5040 7732 SSTR phs001436.v1.p1 Discovering the Genetic Basis of Human Neuroblastoma: A Gabriella Miller Kids First Pediatric Research Program (Kids First) Project General Research Use (GRU) 1694 2281 SSTR phs001437.v2.p1 Pediatric Preclinical Testing Consortium (PPTC) General Research Use (GRU) 267 301 SSTR phs001683.v2.p1 CSER: Incorporation of Genomic Sequencing into Pediatric Cancer Care General Research Use (PUB) (GRU-PUB) 631 773 SSTR phs001714.v1.p1 Gabriella Miller Kids First Pediatric Research Program: An Integrated Clinical and Genomic Analysis of Treatment Failure in Pediatric Osteosarcoma General Research Use (GRU) 84 311 SSTR phs001738.v1.p1 Kids First Pediatric Research Study in Familial Predisposition to Hematopoietic Malignancies (SJFAMILY-HM) General Research Use (GRU) 366 373 SSTR phs001800.v2.p1 Genomics of Pediatric Renal Medullary Carcinomas Disease-Specific (Cancer, MDS) (DS-CA-MDS) 1 5 SSTR phs001800.v2.p1 Genomics of Pediatric Renal Medullary Carcinomas General Research Use (GRU) 1 2 SSTR phs001800.v2.p1 Genomics of Pediatric Renal Medullary Carcinomas Health/Medical/Biomedical (HMB) 13 23 SSTR phs001831.v1.p1 Elucidating Transcription Regulation by Epigenetics in Neuroblastoma General Research Use (GRU) 189 287 SSTR phs001846.v1.p1 Kids First: The Intersection of Childhood Cancer and Birth Defects General Research Use (GRU) 1805 1805 SSTR phs001928.v2.p2 A Comprehensive Genomic Study of Pediatric Malignancy General Research Use (GRU) 267 401 SSTR phs001951.v2.p1 Relapsed Acute Lymphoblastic Leukemia (ALL): Mutational Landscape General Research Use (GRU) 56 159 SSTR phs001965.v1.p1 MP2PRT: Identification of Genetic Changes Associated with Relapse and/or Adaptive Resistance in Patients Registered as Favorable Histology Wilms Tumor on AREN03B2 General Research Use (GRU) 84 84 SSTR phs001993.v1.p1 WES, RNASeq and CNV Analysis of NF1-Associated Atypical Neurofibromas General Research Use (GRU) 69 74 SSTR phs002009.v1.p1 Genomic Landscape of Pediatric Germ Cell Tumors Disease-Specific (Pediatric Cancer Research) (DS-PEDCR) 32 32 SSTR phs002187.v2.p1 Gabriella Miller Kids First Pediatric Research Program in Germline and Somatic Variants in Myeloid Malignancies in Children General Research Use (GRU) 1441 3712 SSTR phs002192.v5.p2 Cancer Moonshot Biobank General Research Use (GRU) 503 2305 SSTR phs002238.v1.p1 Genomic Profiling of Relapsed and Refractory Childhood Cancers Health/Medical/Biomedical (MDS) (HMB-MDS) 202 683 SSTR phs002276.v4.p1 Gabriella Miller Kids First Pediatric Research Program in Pediatric T-Cell Acute Lymphoblastic Leukemia General Research Use (GRU) 1358 5065 SSTR phs002303.v2.p1 PEDS-PLAN - Pediatric Precision Laboratory Advanced Neuroblastoma Therapy Health/Medical/Biomedical (HMB) 45 147 SSTR phs002304.v1.p1 Germline and Somatic Genetic Landscape of Pediatric Rhabdomyosarcoma General Research Use (GRU) 621 621 SSTR phs002307.v1.p1 CSER: South-Seq: DNA Sequencing for Newborn Nurseries in the South General Research Use (GRU) * * phs002317.v2.p1 Genetic Underpinnings of Ethnic Disparities in Bone Toxicities Between Hispanic and Non-Hispanic Children Treated for Acute Lymphoblastic Leukemia Disease-Specific (Leukemia and Lymphoblastic Lymphoma) (DS-LEUKLYM) 101 101 SSTR phs002317.v2.p1 Genetic Underpinnings of Ethnic Disparities in Bone Toxicities Between Hispanic and Non-Hispanic Children Treated for Acute Lymphoblastic Leukemia General Research Use (PUB) (GRU-PUB) 415 415 SSTR phs002322.v2.p1 Kids First: Genetics of Pediatric Germ Cell Tumors General Research Use (GRU) 761 863 SSTR phs002324.v3.p1 CSER: Genomic Sequencing to Aid Diagnosis in Pediatric and Prenatal Practice: Examining Clinical Utility, Ethical Implications, Payer Coverage, and Data Integration in a Diverse Population General Research Use (GRU) * * phs002371.v9.p2 Human Tumor Atlas Network (HTAN) General Research Use (GRU) 1741 5741 SSTR phs002378.v1.p1 CSER: Evaluating Utility and Improving Implementation of Genomic Sequencing for Pediatric Cancer Patients in the Diverse Population and Healthcare Settings of Texas: The KidsCanSeq Study General Research Use (GRU) * * phs002430.v1.p1 Childhood Cancer Data Initiative (CCDI): Genomic Analysis in Pediatric Malignancies General Research Use (GRU) 239 500 SSTR phs002431.v1.p1 Childhood Cancer Data Initiative (CCDI): Enhancement of Data Sharing in Pediatric, Adolescent and Young Adult Cancers Health/Medical/Biomedical (HMB) 611 1448 SSTR phs002492.v1.p1 Study of Leukemia Stem Cells in B-ALL Health/Medical/Biomedical (HMB) 4 20 SSTR phs002517.v4.p2 Childhood Cancer Data Initiative (CCDI): Molecular Characterization across Pediatric Brain Tumors and Other Solid and Hematologic Malignancies for Research, Diagnostic, and Precision Medicine General Research Use (GRU) 3960 9082 SSTR phs002518.v1.p1 Childhood Cancer Data Initiative (CCDI): OncoKids - NGS Panel for Pediatric Malignancies General Research Use (GRU) 1039 2246 SSTR phs002529.v2.p1 Childhood Cancer Data Initiative (CCDI): Comprehensive Genomic Sequencing of Pediatric Cancer Cases (CMRI/KUCC) Disease-Specific (Cancer) (DS-CA) 200 392 SSTR phs002620.v1.p1 Feasibility and Clinical Utility of Whole Genome Profiling in Pediatric and Young Adult Cancers General Research Use (GRU) 114 326 SSTR phs002677.v1.p1 Childhood Cancer Data Initiative (CCDI): Integrating Longitudinal Clinical, Sociodemographic and Genomic Data into the NCCR Health/Medical/Biomedical (HMB) 835 835 SSTR phs002790.v9.p3 Childhood Cancer Data Initiative (CCDI): Molecular Characterization Initiative General Research Use (GRU) 5516 15622 SSTR phs002846.v1.p1 Pharmacogenomics of Mercaptopurine Intolerance in Children with Acute Lymphoblastic Leukemia (AALL03N1) Health/Medical/Biomedical (HMB) 657 650 SSTR phs002847.v1.p1 Circulating Tumor DNA as a Biomarker in Patients with Stage III and IV Wilms Tumor: Analysis from a Children's Oncology Group Trial, AREN0533 Health/Medical/Biomedical (HMB) 50 149 SSTR phs002982.v1.p1 INCLUDE: The Epidemiology of Transient Leukemia in Newborns with Down Syndrome General Research Use (GRU) 436 436 SSTR phs003111.v1.p1 Childhood Cancer Data Initiative (CCDI): Clonal Evolution During Metastatic Spread in High-Risk Neuroblastoma Health/Medical/Biomedical (HMB) 129 487 SSTR phs003143.v1.p1 My Pediatric and Adult Rare Tumor (MyPART) Natural History Study of Rare Solid Tumors General Research Use (GRU) 497 192 SSTR phs003164.v2.p1 Childhood Cancer Data Initiative (CCDI): CCDI Pediatric In Vivo Testing Program - Leukemia General Research Use (GRU) 40 158 SSTR phs003195.v1.p1 NSD2 E1099K Drives Relapse in Pediatric Acute Lymphoblastic Leukemia by Disrupting 3D Chromatin Organization General Research Use (GRU) 6 6 SSTR phs003196.v1.p1 Detection and Targeting of Splicing Deregulation in Pediatric Acute Myeloid Leukemia Stem Cells General Research Use (GRU) 21 36 SSTR phs003226.v1.p1 Genomic Profiling of Pediatric B-cell Acute Lymphoblastic Leukemia Health/Medical/Biomedical (MDS) (HMB-MDS) 53 139 SSTR phs003243.v1.p1 Comprehensive Omics Analysis of Pediatric Solid Tumors and Establishment of a Repository for Related Biologic Studies (10C0086) General Research Use (GRU) 12 66 SSTR phs003432.v1.p1 Childhood Cancer Data Initiative (CCDI): Identification and Targeting of Treatment Resistant Progenitor Populations in T-cell Acute Lymphoblastic Leukemia General Research Use (GRU) 43 43 SSTR phs003446.v1.p1 Profiling RNA Translation in Pediatric Medulloblastoma Health/Medical/Biomedical (HMB) 21 57 SSTR phs003519.v1.p1 Childhood Cancer Data Initiative (CCDI): Single-Cell Atlas of NF1 Nerve Sheath Tumors General Research Use (GRU) 29 55 SSTR - Authorized Data Access Requests
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